Thursday, December 5, 2019
First day back at work
I finally went back to my job and did an annual evaluation today and it really reminded me how much I miss my clients. The little girl that I saw today is such a sweet, smart, and amazing little angel and it was a joy to see her and play with her today. I feel bad for my poor colleague as I am definitely a bit "slow" mentally due to the keppra and time off but she was really wonderful as usual. Today was the first day I met with the client at home (I usually see her at daycare) and therefore was my first session with her mom...I completely forgot that her mom is a nurse at the ER and it turns out that I had in fact met her when I went to the ER following my seizure and head injury, it could have been really awkward but we just laughed about it and had a really nice visit.
The EEG results came back and other than the expected slowing of the normal background rhythm in the area of the cyst the results were normal so my doctor let me know that it is up to me whether I want to continue with the Keppra, try a new medicine, or stop anti-seizure meds at the moment with the understanding that I will have to go back on them if I have another seizure. I am not sure what I want to do, I am not a fan of how I feel on these medications but am also scared of having another seizure...I will talk it over with my husband tonight and see what he thinks because we really are in this together and I want to do what is best for him, Maeve, and all of the wonderful people I am blessed to have in my life.
I also spent a bunch of time researching and learning about the temporal lobes in general and cysts and it is quite fascinating...could this epidermoid tumor be related to my struggles with executive functioning, anxiety, and depression? Research studies on arachnoid cysts in the temporal lobes and psychiatric issues are really interesting and I am surprised by how much I can personally relate to case studies...the poor task initiation, poor organization and massive issues with scheduling, thinking "on my feet".... I know that epidermoid tumors are different but the location is the same...I also contacted a doctor from Yale with experience with epidermoid tumors last night and was delighted when I saw his reply this morning at 6 am in which he cc'ed his secretary to arrange an appointment :) I also contacted a neurosurgeon in Hartford who has experience with epidermoid tumors and am hoping to meet with these additional neurosurgeons soon to figure out what the next steps are.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment